When a society loses its memory, it descends inevitably into dementia. Mark Steyn
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September 25, 2013

Video: How Obamacare is Hurting Families with Chronically Ill Kids



Prayers going out to Pattie's family and others in her situation.

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Some links to more info about Obamacare:

Obamacare's Technology Mess

IPAB: Obamacare's Super-Legislature

Democrats Against Obamacare

ObamaCare Employer Mandate: A List Of Cuts To Work Hours, Jobs

23 comments:

  1. Thanks for posting this! I put it on my Facebook feed so hopefully more people see how the ACA is affecting real middle class families with vulnerable family members.

    -Sarah

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  2. which is interesting because my co pays went down. Each family's situation will be different, I wonder if she called the health insurance marketplace to get better coverage.

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    1. by the way I have chronic pain/illness also

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    2. Glad it's working out for you. Hope it continues.

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    3. Also another comment I saw online that I like. Alexander Wayland-James for the most part I haven't even seen the media calling it that so most likely they hear affordable care act and they think its something that will make their premiums cheaper.

      btw, its not. The purpose is to make really long term and expensive conditions easier to pay for because your insurance company can't kick you out. Whether insurance gets cheaper or not will honestly depend on how many previously uninsured or underinsured enter the risk pool.

      I'm amazed but apparently if enough people start paying for insurance, overall costs could actually go down.

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    4. My insurance premium doubled last year and again this year. My co-pays went up last year and again this year. Good luck!

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  3. Jessica..did your rates go up tho? They said all would..ABUNCH!!

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  4. Our premiums went up 45% last year. We'll find out in November whether, as rumored, husband's employer drops our current insurer. If so, it will mean we'll lose access to all our doctors because Kaiser is a closed network. No guess as to what our premiums, or coverage, will be.

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  5. I am sorry for your difficulties, but of the things you have blamed Obamacare for most are not the fault of Obamacare, but of your insurance company. I would try to send these complaints to them, or change insurance companies. After all, hardly any of Obamacare has taken effect yet. My premiums have gone up every year for the past 12 years, while my coverage has gone down. But I am thankful that I have insurance. My mother and daughter both have had no insurance so I know what it means to have no insurance. Obamacare may not be perfect, and I know there will have to be a lot of work done on it, but I for one am thankful for it. I will not have to worry if my mother or daughter or grandbabies get sick.

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    1. Finally, a reasonable response! Thank you for speaking the TRUTH when so many lies are out there!

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    2. Its is not clear from this heart breaking video which of her costs are the result of the ACA and which are the result of the continued rise in private health care generally. Insurance coverage under the ACA does not actually start until Jan 1st - so whatever insurance she currently has is not ACA. The medical device tax started in January 2013. Its 2.3% - meaning a $1000 of syringes and catheters has a bank breaking $23 tax added - so perhaps the rise in cost she is seeing in insurance coverage and device costs is actually a draconian and cruel action by insurance companies and device manufacturers - not the result of the ACA. The MedDevice lobby has launched a full court press against the tax and is attributing pre ACA job cuts to it. They seem to be willing to sacrifice short term productivity for long term profits. You think? In the long run one would expect an additional 30 million customers to lead to the demand for a lot more catheters and a reduction in price and increases in sales as it will also create an increased need for medical staff, nurses, doctors - as well as MRI, x-ray, CAT scan machines, uniforms and facilities. Anecdotal presentations are often compelling but may not present all the facts. I just compared NJ exchange prices (supposedly among the highest) with what we are currently paying and two of the plans are about $150 less. I have not compared all the coverages and costs to determine if this reduction is real but even if the final costs were comparable it might still be worth the switch.
      a few seconds ago

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  6. If my wife was still alive, ACA would bankrupt us. It's not the Insurance companies to blame, they are just adjusting the policies into line with obamacare. If you look at the different plans offered. They all do the same. But the biggie is the medical equipment tax. Why tax equipment that is necessary for the chronicxally ill. I wonder how many more stories out there are like this. I cared for my wife for 10 years while she had MS. When I think of all the medical equipment we had to keep in the house, the tax alone would have paid for the house. All the equipment that the Insurance company provided, specialized beds, wheel chairs, feeding machines. Her final bed alone cost them approaching 100K.

    The poor are going to be no better off with insurance, because they can't afford the co-pay or deductible.

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  7. Its a sad fact that many lives will be lost because of the ACA. My brother suffered from chronic illness from the age of 4 to 26 when he died. Unable to walk or properly communicate, he required physical therapy every week. He needed feeding tubes, wheelchairs, specialized automobiles to transport him, catheters, adult diapers and the two dozen subscription medications that kept his organs from failing. If he was still here today, there is no possible way we would have been able to keep up with payments, especially with such regular doctor appointments and a plethora of medical supplies needed. we could barely afford things ten years ago even with settlement money. I am frightened for the people in the future who may have sons, daughters, siblings, or parents in a similar situation. Sooner or later we will all be feeling the negative effects of this Act one way or another.

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  8. Does everyone know that if you are elderly and have a terminal illness doctors and hospitals are not allowed to treat you because its a waste of money and time. That information came from a doctor and this law/rule is included in Obamacare!

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    1. Really? I have a copy of the ACA on my computer and there is nothing in there about this... Interesting... Maybe my eyes missed this, or maybe just maybe this didn't come from a doctor. And if it did this doctor is gravely misinformed and will lose patients and money due to his lies... Currently, doctors can deny anyone at anytime even before the ACA. So that is a mute point... Now with the ACA, people can really look into their coverage and will have a list of doctors who take that insurance. Also, please keep in mind that the insurance on the exchange is not all government insurance... There are a lot of private insurance companies who have signed up to participate in this program to GAIN more participants... Lastly, if you qualify for a subsidy through the government due to your income, that information is NOT passed to the insurance companies so they have no clue who gets what... Now that the TRUTH is out there I really, really wish people would stop it with this death panel crap that the REPUBLICANS made up just to suite their needs...

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    2. You read the entire 2,200 pages... and the regulations...? Wow. Pretty good. Something Congress never did prior to enacting this debacle. The debate over ObamaCare is not "moot" (or "mute"). The Republicans didn't make up death panels to "suit" (or "suite") their needs.

      I concede the term "death panel" is not in the Act. However, the term "Independent Payment Advisory Board" is. According to analysts, the IPAB will be able to stop certain treatments its members do not favor by simply setting rates to levels where no doctor or hospital will perform them.

      It's not a difficult extension to believe that this cost cutting board will vote to deny care. For example, in Oregon, the Health Evidence Review Commission (created because of ObamaCare) voted to approve a guideline concerning Medicaid patients. The guideline said that “treatment with intent to prolong survival is not a covered service for patients who have progressive metastatic cancer” and are not able (in the view of the physician) to be helped. Palliative care is all that will be provided.

      There you have it - a bureaucrat - not a physician - deciding what care you would get or not. No "miracle cures." Nope. Just pain medicine and a trip to the Undertaker.

      Perhaps the poster who loves ObamaCare can explain why, if the ACA is the greatest thing since sliced bread, so many of POTUS's allies are getting exemptions? Please, explain. I'll even suffer the ellipses and malapropisms and misplace capitals from such a well-informed DEMOCRAT.

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    3. Apparently you did not "suffer the ellipses and malapropisms and misplace (sic) capitals..." since you corrected them. To your point about the length of the bill - the key points of the ACA as they impact consumers can be summarized on a few web pages (Kaiser Healthcare does an excellent job) . Details of specific plans under the state exchanges also take a few web pages. I can confirm this as I have looked at plans on my states site. For small business owners there are more details to absorb but again it is not overwhelming and there are resources available to assist in navigating the course. Small business owners also have been granted a one year delay to make the transition manageable. The AMA opposes the IPAB but has published a very complete three page outline which explains what its responsibilities are and how members are selected. This is certainly not anything remotely like a "death panel". I would refer anyone with concerns to visit the AMA web site and decide for themselves. Appointments to the panel follow "advise and consent" process with bipartisan control (six members each) with three non voting members - HHS secretary, CMS and HRSA admins. The twelve voting members must have specific professional qualifications - physicians, health care financial expertise, etc. The exclusive focus of the IPAB is on sustaining medicare cost savings. They have no role in critical care decisions on persons covered on a family plan - nor on the future costs of those plans. Their role is limited to medicare. Once per year they evaluate current cost trends and advise on any rate adjustments - with required congressional approval. The IPAB strikes me as one of the better designed elements of the ACA - and is worth becoming knowledgeable about it.

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  9. My daughter is chronically ill and this is going to hurt us a lot. She has CP and many other health problems which require equipment that will be taxed. I have atrophy of the brain and a pacemaker which I won't be able to replace now and some other health care issues and I guess we will probably both die because we won't be able to afford the equipment or the medications. There are many in same fix we are and none of us will survive it. It's a disaster.

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  10. Obamacare is just going into effect tomorrow. I don't understand.

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  11. Yes, part of it is going into effect tomorrow, for some people, but parts of it have already been in effect for a while. But health care providers, insurers, and businesses have been anticipating the changes and making their own adjustments to be in compliance since the law was passed in 2009. Most people who get their coverage for themselves and their families through their employers will see the real changes during this fall's upcoming open enrolment period, and then they'll feel the changes as many of them look for new doctors, use their new coverage, and pay their new premiums (otherwise known as "finding out what's in it"). I'll try to add some links to some informational articles under the video.

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    1. Why are there so many Anons here? Scared to use your name?...............Phil Montana

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  12. Just got off the phone with my health insurance company., My insurance will be $1200 effective on May 1, 2014 -- that is the cheapest plan I qualify for with them. Been with them since 1989. Currently pay $665.81.

    Went on to the Exchange -- was quoted the same price there but since we are 68% of poverty we are not allowed to buy from the Exchange. We qualify for Medicaid HOWEVER Medicaid did not expand in Kansas so I am unable to have that either. I was told to find a low cost clinic. Good News -- the fine does not apply to me right now either.

    I have had individual insurance since 1989 -- always had it and now because of ObamaCare I am the new "uninsured".

    Mom to 4 Adult Children that did not get to keep Mom's plan until 26 and 2 of them are disabled. They (disabled sons) have Medicaid so I guess they are safe for now.

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  13. Well, I lost my job to Obamacare. My 30hr position at a family owned heat treatment operation was eliminated as of Sept. 30th. Turns out they were just a few employees over the 50 employee mark and since I had recently been averaging over 30 (about 32) hours a week with them, they couldn't afford my insurance and the insurance they'd have to provide everyone else if I had stayed on.

    People who think this legislation is good for the economy are delusional!

    Sarah (posted earlier on thread)

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